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Table of Contents



Related titles:

You, Your Child, and "Special" Education: A Guide to Making the System Work, Revised Edition

Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child with a Disability, Revised Edition

Retarded Isn't Stupid, Mom! Revised Edition

Nobody's Perfect: Living and Growing with Children Who Have Special Needs

Believe in My Child with Special Needs!

Optimizing Care for Young Children with Special Health Care Needs

When Your Child Has a Disability

Listening to the Experts: Students with Disabilities Speak Out





Professional insight on working with families who have a child with special needs—from a mom who's been on both sides of the desk

New!
Melanie, Bird with a Broken Wing
A Mother's Story
By Beth Harry, Ph.D.



"A moving and beautifully crafted memoir ..." —Batya Elbaum, Ph.D., Associate Professor, School of Education, Miami

"A book about acceptance ... [with] plenty of human and medical insights." —Exceptional Parent magazine

Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born with a rare form of cerebral palsy and died less than 6 years later.

Captivating the reader from page one, Dr. Harry illuminates the full spectrum of her parenting experiences—from the day her "little bird" came into the world to the day she left. Readers will come away with a deep understanding of

  • the complex emotions that parents experience as they adjust to life with a child who has special needs

  • the practical and emotional aspects of supporting a child with feeding difficulties, vision impairment, and limited motor skills

  • the joy parents experience when their child begins to communicate and make personal connections

  • the lasting impact a professional's words can have on a parent, and the need to provide positive support that allows a child to reach her full potential

  • the services, therapies, and interventions that improved Melanie's quality of life—and how they've changed since her story began in the 1970s

Ideal for use as a supplemental text in courses for preservice early interventionists, early childhood special educators, special educators, and health professionals, this book gives readers an unforgettable inside look at what families experience when their child has a disability—and how to meet their needs as their child grows.

Eye-opening and inspiring, Melanie, Bird with a Broken Wing will leave a lasting impression and will, as Dr. Harry urges, prepare readers "to believe the messages of their hearts as they make professional decisions."

Reader's Guide included! Perfect for use in the classroom or in book clubs, the thought-provoking discussion questions help professionals absorb the book's lessons and apply them to everyday practice with families.


Melanie, Bird with a Broken Wing: A Mother's Story

ORDERING INFO
ISBN 978-1-59857-113-4
Paperback
232 pages /
8.25 x 5.5
2010 / $24.95
Stock# 71134


Exam Copy


Table of Contents

About the Author
Acknowledgments

Part I

Chapter 1. With a Whimper
Chapter 2. Melanie
Chapter 3. Empty Hands
Chapter 4. The Sweet Bird
Chapter 5. The Dream Is Me
Chapter 6. Crashing
Chapter 7. Gargling
Chapter 8. Choking
Chapter 9. Vomiting
Chapter 10. In Our Hands
Chapter 11. "Oh God! No!"
Chapter 12. The Bearer of Bad News
Chapter 13. Nestargel
Chapter 14. The Spiral Staircase
Chapter 15. Smiling
Chapter 16. Initial Assessments
Chapter 17. Seeing
Chapter 18. Interpreting
Chapter 19. Swallowing
Chapter 20. Invisible Chains
Chapter 21. Love and Faith
Chapter 22. Mummy Therapy
Chapter 23. A Very Sick Baby
Chapter 24. The Turning Point
Chapter 25. Sleep Feeding
Chapter 26. Thriving
Chapter 27. Naming the World
Chapter 28. Morning Has Broken

PART II

Chapter 29. Mark
Chapter 30. Seeking Another View
Chapter 31. The Forest or the Trees?
Chapter 32. Joan and Wendy
Chapter 33. The Shade of the Immortelle
Chapter 34. Bobath Therapy
Chapter 35. A Temporary Goodbye
Chapter 36. "Yes!"
Chapter 37. Back to School
Chapter 38. Magnificent Helpers
Chapter 39. A Happy 4-Year-Old
Chapter 40. A New Decade
Chapter 41. Dynamic Reassessment
Chapter 42. CT Scan
Chapter 43. Brain Gazing
Chapter 44. Mercedes and Elizabeth
Chapter 45. The Spreading Branches of the Immortelle
Chapter 46. A Fairy-Tale Morning
Chapter 47. From Fairy Tale to Nightmare
Chapter 48. The Worst of Times
Chapter 49. The End
Chapter 50. She Looks All Right
Chapter 51. Goodbye

Epilogue
Melanie
References
Reader's Guide



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